I think her doctor knows from oblique references he’s made, but at this point we really need someone to level with us so that we can help her make some decisions about living arrangements. Hoping someone here can point me in the right direction. I’ve got a copy of the EMG and will gladly research every velocity reading and latency difference if necessary. I think she would benefit from straight talk. Mom is a tough lady and can handle bad news. She’s now on her first course of steroids and her Cellcept has been increased. He just keeps saying “a long time.” She has been suffering acutely now with Consecutive relapses for over six months, with good initial response to plasma exchange, no response at all to IVIG and diminishing positive response to PLEX in subsequent treatments. He says this can be determined from the report but he won’t interpret the results in this way. I’d at least like to know if the axonal damage is minimal, moderate or severe. I have seen reports of axon damage taking up to three years to recover. I don’t think her doctor is being very forthcoming about the level of axonal damage she has, only that there is damage to the axons and it will take a “long” time for the nerves to regenerate.
Can anyone shed light on which parts of the EMG results may indicate axonal damage? My mother is being treated for her fourth relapse this year.
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